International Advisory Committee (IAC)
Wendy Rogers, FRACGP, PhD (Chair)
Professor of Clinical Ethics – Australia
Prof. Rogers is a Professor of Clinical Ethics and Deputy Director of the Macquarie University Research Centre for Agency, Values and Ethics, Australia. She has a long-standing interest in the ethics of organ donation and transplan- tation. While a member of the Australian Health Ethics Committee (2003-2006), she served as deputy chair of the working party responsible for developing the National Health and Medical Research Council’s guidelines for organ and tissue donation.
She also served on working parties developing national guidance on donation after circulatory death. Her current research interests include organ donation, research ethics, ethics of surgical practice, and overdiagnosis. Wendy’s work is widely published in international journals and she is the co-editor of a recent collection on Vulnerability (published by Oxford University Press).
Angela Ballantyne PhD
Bioethicist – New Zealand
Dr Ballantyne is President of the International Association of Bioethics and a Senior Lecturer in the Department of Primary Health Care & General Practice, Universtiy of Otago, New Zealand. In 2016 she received a UOW Award for Best Emerging Researcher. Her research interests include exploitation, research ethics, vulnerability, ethics of pregnancy and reproductive technologies, and secondary use research with clinical data.
Dr Ballantyne has worked in a wide range of international settings, including Australia, England, Europe and the United States. She has worked in schools of medicine, primary health care and philosophy. Her interest in global health policy lead to a position as Technical Officer for Genetics and Ethics for the Human Genetics unit at WHO in Geneva in 2005, where she worked on projects concerning the ethical, legal and social issues associated with medical genetics.
Arthur Caplan, PhD
Professor of Bioethics – USA
Professor Caplan is currently the Drs. William F and Virginia Connolly Mitty Professor and founding head of the Division of Bioethics at New York University Langone Medical Center in New York City.
He is the co-founder and Dean of Research of the NYU Sports and Society Program and the head of the ethics program in the Global Institute for Public Health at NYU and also founded the Center for Bioethics and the Department of Medical Ethics and the Center for Biomedical Ethics, the University of Pittsburgh, and Columbia University.
Prof. Caplan is the author or editor of thirty-five books and over 700 papers in peer reviewed journals.
He is the recipient of many awards and honors including the McGovern Medal of the American Medical Writers Association and the Franklin Award from the City of Philadelphia. He was a person of the Year-2001 from USA Today. He was described as one of the ten most influential people in science by Discover magazine in 2008.
He has also been honored as one of the fifty most influential people in American health care by Modern Health Care magazine, one of the ten most influential people in America in biotechnology by the National Journal, one of the ten most influential people in the ethics of biotechnology by the editors of Nature Biotechnology and one of the 100 most influential people in biotechnology by Scientific American magazine. He received the Patricia Price Browne Prize in Biomedical Ethics for 2011. In 2014 he was selected to receive the Public Service Award from the National Science Foundation/National Science Board which honors individuals and groups that have made substantial contributions to increasing public understanding of science and engineering in the United States. In May, 2016 the National Organization for Rare Disorders (NORD) honored him with their ‘Rare Impact Award’.
He holds seven honorary degrees from colleges and medical schools. He is a fellow of the Hastings Center, the NY Academy of Medicine, the College of Physicians of Philadelphia, the American College of Legal Medicine and the American Association for the Advancement of Science.
He is a regular commentator on bioethics and health care issues for WebMD/Medscape, for WGBH radio in Boston and WMNF public radio in Tampa. He appears frequently as a guest and commentator on various other national and international media outlets.
Heather Draper PhD
Professor of Bioethics – UK
Heather has an international reputation as a bioethicist with over 100 research papers on a wide range of issues in bioethics in peer reviewed journals and edited collections. She is a Professor of Bioethics at the University of Warwick in the UK.
Heather has been invited to serve on several national policy bodies (UK Donation Committee, Human Genetics Commission (co opted), Unrelated Live Transplantation Regulatory Authority) as well as being active in clinical and research ethics locally.
Heather is currently the ethics consultant for the Royal Centre of Defence Medicine, and leading an ESRC funded project exploring the ethical challenges face by Defence Medical Service personnel who deployed to Sierra Leone during the Ebola outbreak in West Africa. She was actively involved in the pandemic influenza planning of two local hospitals and appointed as a consultant on ethics to the West Midlands Strategic Health Authority during the 2009 swine ‘flu pandemic. This appointment was a direct result of her work in pandemic ethics in 2008-9. She is Vice Chair of the COST Action Disaster Bioethics.
Barrister – UK
Eeva Heikkila practices both internationally and domestically in the fields of human rights and public law. She has developed a niche area of international practice as a member of the English Bar, challenging faux international arrest warrants and abuses of process by repressive kleptocrat States. She regularly represents persecuted opposition politicians, human rights defenders, private entrepreneurs and investors and journalists.
Eeva’s other international work concerns the use of torture, fair trial, arbitrary detention, freedom of expression, disappearances, terrorism, extradition and challenging the abuse of the mutual legal assistance regimes. She has represented a number of victims of human rights violations at the European Court of Human Rights; UN Committee Against Torture; UN Working Group on Enforced or Involuntary Disappearances and UN Committee on Economic, Social and Cultural Rights.
Eeva has worked at the United Nations, the European Union and the Council of Europe as an Advisor on Human Rights. She was a Visiting Professional at the Immediate Office of the Prosecutor of the International Criminal Court in 2010.
Eeva is currently the elected Chair of the Human Rights Lawyers’ Association and a mentor at the Lincoln’s Inn Pupillage Foundation Scheme. She is also a member of Justice and Howard League.
Founder, European Instrument for Democracy & Human Rights
Edward McMillan-Scott was MEP for Yorkshire & Hunter 1984-2014 and VIce-President of the European Parliament from 2004-2014. As Vice-President his portfolio included Democracy & Human Rights, and Transatlantic Relations. Internationally recognised and respected as a staunch defender of human rights, from dissidents in the ex-Soviet bloc to China and the Arab World, Edward lends his voice to the voiceless.
A frequent visitor to the Middle East, he has long advocated democratic reforms across the Arab world. He founded the €180 million European Instrument for Democracy and Human Rights (EIDHR), which promotes democracy and human rights worldwide, operating without host country consent.
In 2013, Edward launched the Defending Freedoms Project in Brussels and Washington together with blind Chinese activist Chen Guancheng. The transatlantic project between the EU and US highlights human rights abuses around the world and calls on MEPs and US congressmen and women to advocate on behalf of individual prisoners of conscience worldwide.
Edward advocates civil liberties, fair elections, fair taxation, education reform and radical reform of the EU’s Common Agricultural Policy. He stopped eating meat in 2008 to draw attention to climate change; ‘green’ and heritage issues are central to his agenda. He supports EU economic governance after the Euro crisis to sustain the EU’s Single Market – which has created 3.5 million jobs in the UK. He also campaigns for better child rights across the EU.
Author, journalist – UK
Benedict Rogers is the East Asia Team Leader at the international human rights organisation Christian Solidarity Worldwide (CSW), based in London, where he specialises in Burma, Indonesia, China and North Korea. He is also the Co-founder and Deputy Chair of the Conservative Party Human Rights Commission in the UK, and a former parliamentary candidate.
Ben travels widely in the region, including making over 50 visits to Burma and its borderlands and several visits to Indonesia. In 2010, he travelled to North Korea with Lord Alton of Liverpool and Baroness Cox of Queensbury, members of the House of Lords, and in 2011 he co-founded the International Coalition to Stop Crimes against Humanity in North Korea (ICNK). Ben has also lived in and travelled to East Timor and China, and previously worked on Pakistan and Sri Lanka. From 1997-2002 he lived in Hong Kong, working as a journalist, and in 2003-2004 he was based in Washington, DC, establishing CSW’s presence there.
Ben regularly briefs senior Government ministers and officials, UK Members of Parliament, the European Union, United Nations officials, US Congressional offices and the State Department on human rights and freedom of religion or belief in Asia, and has testified in hearings at the European Parliament, the House of Commons, the Japanese Diet and the US Congress. He is a regular speaker at conferences and universities around the world.
He is the author of six books and a regular contributor to international media, including The Wall Street Journal, The New York Times, The Huffington Post, The Guardian and The Catholic Herald, and has appeared on BBC, CNN, Sky and al-Jazeera. Ben has an MA in China Studies from the School of Oriental and African Studies (SOAS), and a BA in Modern History and Politics from Royal Holloway College, University of London. He is co-founder of the International Coalition to Stop Crimes Against Humanity in North Korea (ICNK) and has testified in the US Congress, the European Parliament, the British Parliament and the Japanese Parliament.
Former Surgeon from Xinjiang, China – UK
Enver Tohti worked for over 13 years at the Railway Central Hospital in Xinjiang, China, as a surgical oncologist. He is featured in the award winning documentary Hard To Believe where he tells his story of being asked to remove the organs from a living prisoner who had just received a non-fatal gunshot in the chest. He has subsequently spoken at numerous events around the world including parliamentary hearings and film premieres.
After discovering the connection between the disproportionately high malignant tumour rate and the nuclear test in the Tarim Basin in Xinjiang, he exposed the devastating effect of the nuclear test by making the documentary film Death On the Silk Road. As a result he was compelled to quit the PRC and seek asylum in the UK. Upon settling in London he continued to promote knowledge about the shocking consequences of nuclear testing in the Lupnor (luobopu) area, and fought for the rights of the test victims. Tohti also campaigned for the human rights of the Uyghur people and, for a number of years, headed the Uyghur political activities in the UK. His more rational and realistic stand on the Uyghur issue proved incompatible with the separatist tendencies of other Uyghur Diaspora organisations based in the West, so he detached himself from the World Uyghur Congress and continued his individual crusade thereafter. Tohti created the online platform Silk Road Dialogue, where various interest groups could share their views and debate controversial issues in a civilised manner.